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2020

Gesundheitsökonomie und personenzentrierte Versorgung chronischer Wunden in Deutschland

M. Augustin, R. Sommer

Dissemond J, Kröger K, Initiative Chronische Wunden e. V. (Hrsgg): Chronische Wunden: Diagnostik - Therapie - Versorgung. München: Urban & Fischer Verlag 2020: 419-428.

Development and psychometric evaluation of the U.S. English Wound-QoL questionnaire to assess health-related quality of life in people with chronic wounds

Sommer R, von Stülpnagel C, Fife C, Blasingame M, Anders MJ, Thompson D, Augustin M, da Silva N, Blome C (2020, October). 

Annual Conference of the International Society for Quality of Life Research 2020: ID3111

Disease burden and patient needs and benefits in anogenital psoriasis: developmental specificities for person-centred healthcare of emerging adults and adults

N. da Silva1, C.C. von Stülpnagel1, A. Langenbruch1, A. Danckworth1, M. Augustin1, R. Sommer1

German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

J Eur Acad Dermatol Venereol. 2020 May;34(5):1010-1018

 

Establishing romantic relationships involving cohabitation and/or sexual intercourse is an overriding task for many people during emerging adulthood, i.e. from their late teens through the twenties. The diagnosis of anogenital psoriasis may hinder social/intimate relationships, resulting in higher disease burden in this age group.

PMID:
31715033
DOI:
10.1111/jdv.16076

Cumulative Life Course Impairment – systematisches Review zur Bestimmung von Indikatoren

C. von Stülpnagel, L. Düpmann, N. da Silva, M. Augustin, R. Sommer (2020, September)

19. Deutscher Kongress für Versorgungsforschung 2020: ID215

Umsetzung der WHA-Resolution in Deutschland: Entwicklung, Erprobung und Evaluation von Interventionen zur Entstigmatisierung von Menschen mit sichtbaren chronischen Hauterkrankungen

R. Sommer, S. Mrowietz, R. von Spreckelsen , U. Mrowietz, C. Luck-Sikorski, N. Weinberger , M. Augustin

19. Deutscher Kongress für Versorgungsforschung 2020 (Oral presentation): ID142

Stigmatisierung durch Haarausfall – eine systematische Literaturübersicht

M. C. Schielein1, L. Tizek1, S. Ziehfreund1, R. Sommer2, T. Biedermann1, A. Zink1

1Klinik und Poliklinik für Dermatolo- gie und Allergologie am Biederstein, Fakultät für Medizin, Technische Universität München

2Institut für Versorgungsforschung in der Dermatologie und bei Pflege- berufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Hamburg

J Dtsch Dermatol Ges. 2020 Dec;18(12):1357-1369

 

Haarausfall ist ein Symptom, das Stigmatisierung und starke Einbußen in der Lebens- qualität mit sich bringen kann. Ziel dieser systematischen Übersichtsarbeit war es, die Literatur zum Thema Stigmatisierung bei Haarausfall auszuwerten. Mit vordefinier- ten MeSH-Begriffen und Schlagwörtern wurde eine systematische Suche in den Da- tenbanken MEDLINE (PubMed), EMBASE, PsycINFO und PsycNET durchgeführt.

Hair loss is a symptom that can cause stigmatization and severe impairment of qua- lity of life. The aim of this systematic review was to evaluate the literature on stig- matization of hair loss. Using predefined MeSH terms and keywords, a systematic search was performed in the databases MEDLINE (PubMed), EMBASE, PsycINFO and PsycNET.

PMID:
33373136
DOI:
10.1111/ddg.14234_g

Perception and determinants of stigmatization of people with psoriasis in the German population

R. Sommer1, J. Topp1, U. Mrowietz2, N. Zander1, M. Augustin1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Psoriasis-Center at the Department of Dermatology, University Medical Center Schleswig-Holstein, Kiel, Germany

J Eur Acad Dermatol Venereol. 2020 Dec;34(12):2846-2855

 

Perception of psoriasis in the general population is characterized by knowledge deficits and prejudice against those affected. The extent and possible predictors of stigmatizing attitudes remain unclear.

PMID:
32277524
DOI:
10.1111/jdv.16436

Development and psychometric evaluation of the U.S. English Wound-QoL questionnaire to assess health-related quality of life in people with chronic wounds

R.Sommer1, C. C. von Stülpnagel1, C. E. Fife2,3, M. Blasingame3, M. J. Anders4, D. Thompson4, M. Augustin1, N. da Silva1, C. Blome1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg- Eppendorf (UKE), Hamburg, Germany

2Baylor College of Medicine, Houston, Texas, USA

3The U.S. Wound Registry , The Woodlands, Texas, USA

4CHI St. Luke's Wound Clinic , The Woodlands, Texas, USA

Wound Repair Regen. 2020 Sep;28(5):609-616

 

People with chronic wounds perceive an impaired health-related quality of life (HRQoL). For the assessment of HRQoL, valid instruments are needed. Therefore, the Wound-QoL questionnaire was originally developed and psychometrically validated for use in Ger- many. As the Wound-QoL is to be used in numerous countries, international versions are required. Therefore, this study aimed to psychometrically validate the U.S. English Wound-QoL version. Upon translation into U.S. English, psychometric testing was per- formed based on cross-sectional data deriving from the U.S. Wound Registry.

PMID:
33372379
DOI:
10.1111/wrr.12837

Impact of moderate to severe pruritus in patients with psoriasis: Association between disease burden, patient needs and interpersonal experiences


R. Sommer, M. Augustin, C. Hilbring, S. Ständer, M. Hubo, HJ. Hutt, C. von Stülpnagel, N. da Silva

19. Deutscher Kongress für Versorgungsforschung 2020 (Oral presentation): ID285

Impact of pruritus in patients with psoriasis: Associations between disease burden, patient needs and interpersonal experiences

N. da Silva, M. Augustin, S. Ständer, C. von Stülpnagel, M. Hubo, C. Hilbring, HJ. Hutt, R. Sommer (2020, February). 

Poster session presented at the Dermatologie KOMPAKT & PRAXISNAH 2020, Dresden, Germany. 

DOI:
10.13140/RG.2.2.24617.34405
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