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Quality of life of children and adolescents with short stature: The twofold contribution of physical growth and adaptive height-related cognitive beliefs

B. Mergulhão1, P. J. Almeida2, H. Moreira1, C. Castro-Correia2, M. Bullinger3, M. C. Canavarro1, N. da Silva4 

1 Center for Research in Neuropsychology and Cognitive and Behavioral Intervention (CINEICC), Faculty of Psychology and Education Sciences, University of Coimbra, Rua do Colégio Novo, 3000-115, Coimbra, Portugal.

Pediatric Endocrinology Unit, Integrated Pediatric Hospital, São João Hospital Center, Porto, Portugal.

Department of Medical Psychology, Center for Psychosocial Medicine, University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

Center for Research in Neuropsychology and Cognitive and Behavioral Intervention (CINEICC), Faculty of Psychology and Education Sciences, University of Coimbra, Rua do Colégio Novo, 3000-115, Coimbra, Portugal. neuzambsilva@gmail.com.

This study aimed to examine the health-related quality of life (HrQoL), coping, height-related beliefs, and social support of children/adolescents with short stature, the sociodemographic, clinical, and psychosocial variables associated with HrQoL, and the moderating role of sociodemographic and clinical variables on the associations between psychosocial variables and HrQoL.

Is Social Stigma Responsible for the Poor Psychological Adjustment of People with Visible Skin Disease? A Meta-Analysis

CFZ. Stuhlmann, S. Lysakova, C. Jordan, TA. Revenson (2022, April)

Poster accepted for the Society of Behavioral Medicine, Baltimore, MD.

A Structured Intervention for Medical Students Significantly Improves Awareness of Stigmatisation in Visible Chronic Skin Diseases: A Randomised Controlled Trial

R. Sommer1, N-A. Weinberger2, R. Von Spreckelsen3, U. Mrowietz3,  M. C. Schielein4, C. Luck-Sikorski2 , M. Augustin1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg,

2Research group: Chronic diseases and psychological health (COPE), SRH University of Applied Health Sciences, Gera

3Psoriasis-Center Kiel, Department of Dermatology, Venereology and Allergology, University Medical Center Schleswig-Holstein, Campus Kiel, Kiel

4Department of Dermatology and Allergology, Faculty of Medicine, Technical University of Mun

Acta Derm Venereol. 2022 Jan 31;102:adv00641.

 

People with visible skin diseases often experience stigmatisation. The aim of this study was to develop and evaluate an intervention for medical students to counter the stigmatisation of people with skin diseases. A 3-h intervention was developed, including self-experience, education and a patient encounter. Effectiveness regarding outcomes was assessed at 3 time points: before and immediately after the intervention, and at 3-month follow-up. Data from 127 participants were analysed. Regarding all outcomes, significant effects were observed in the intervention group, for
“social distance”, “agreement with negative stereotypes”, “agreement with disease-related misconceptions” and “intended behaviour”. These results should encourage medical faculties to invest in such courses to prevent stigmatisation.

Patient-physician (Dis)agreement on their Reports of Body Surface Area Affected by Psoriasis and ist Associations with Disease Burden

N. da Silva1, M. Augustin1, C. Hilbring1, C.C. von Stülpnagel1, R. Sommer1

1 German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

The people-centred model of care for psoriasis emphasizes the importance of prioritizing patient’s needs and preferences in clinical decisions, along with physician-rated disease severity. However, patients and physicians often differ on their perceptions of disease severity, which might influence treatment adherence/satisfaction and health outcomes. This study aimed at understanding the extent and direction of patient–physician (dis)agreement on their reports of body surface area (BSA) affected by psoriasis and exploring which patient-reported outcomes (PROs) might contribute to explain the disagreement.

How do dermatologists' personal models inform a patient-centred approach to management: a qualitative study using the example of prescribing a new treatment (Apremilast)

R. M. Hewitt1, C. Bundy1, A-L. Newi2, E. Chachos3, R.Sommer2, C.E. Kleyn4, Matthias Augustin2, C.E.M. Griffiths4,  C. Blome2

1School of Healthcare Sciences, College of Biomedical & Lifesciences, Cardiff University, Cardiff, UK

2Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany

3Turner Institute for Brain and Mental Health, Monash University, Melbourne, Australia

4University of Manchester, The Dermatology Centre, Barnes Building, Salford Royal NHS 

Br J Dermatol. 2022 Jan 22. doi: 10.1111/bjd.21029

 

The quality of dermatology consultations is partly determined by how clinicians approach patient care. The term ‘Personal Models’ describes the explanatory frameworks of thoughts, feelings and experiences that drive behaviour. One study found that clinicians’ personal models, specifically their beliefs about autonomy and patient self-management, influenced the degree to which clinicians engage patients in shared decision-making during consultations. Further research is needed to further explore how clinicians’ personal models inform and affect the quality of patient care.

Measuring Well-being in Psoriasis: Psychometric Properties of the WHO-5 Questionnaire

R. Sommer1, L. Westphal1, U. Mrowietz2, S. Gerdes2, M. Augustin1

Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

Psoriasis-Center Kiel, Department of Dermatology, University Medical Center Schleswig-Holstein, Kiel, Germany

According to the definition of the World Health Organization, health is not only understood as the absence of disease, but also as the restoration of full physical, mental and social well-being. Therefore, in the management of psoriatic disease, well-being should be included as an important endpoint. So far, primarily burden-focused patient-reported outcome instruments such as the Dermatology Life Quality Index (DLQI) are used in practice and research, many showing marked limitations. Thus, the aim of this study was to test the psychometric properties of the generic WHO-5 questionnaire for the assessment of well-being in people with psoriasis.

Current Evidence in Psychodermatology on the Stigmatizing Experience of Visible Skin Diseases: A Meta-analysis Review

CFZ. Stuhlmann, S. Lysakova, C. Jordan, TA. Revenson, R. Sommer, LO. Wilhelm (2022, August)

Poster accepted for the European Health Psychology Society, Bratislava, Slovakia 

Dermatological care of elderly people with psoriasis before and after entering a nursing home: A qualitative analysis from the perspective of medical providers

 C.C. von Stuelpnagel1, J. Petersen1, M. Augustin1, R. Sommer2

1Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Deutschland.

2Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Deutschland. r.sommer@uke.de.

Hautarzt. 2022 Apr 28.

 

Demografische Veränderungen bewirken einen steilen Anstieg der Anzahl der über 65-Jährigen. Damit verbunden ist die Zunahme der Anzahl pflegebedürftiger, multimorbid Erkrankter. National wie auch international gibt es keine Informationen insbesondere zur Versorgung von Psoriasiserkrankten im Setting Pflegeheim und zur Frage, wie diese durch den Eintritt in ein Pflegeheim beeinflusst wird.

Psychometric properties of the short version of the Freiburg Life Quality Assessment for chronic venous disease

T.M. Klein1, B. Bal2, A.L. Newi2, G. Bruning3, R. Sommer2, M. Augustin2, C. Blome2

1Institute for Health Services Research in Dermatology and Nursing, University Medical Center Hamburg-Eppendorf, Hamburg, Germany. Electronic address: t.klein@uke.de

2Institute for Health Services Research in Dermatology and Nursing, University Medical Center Hamburg-Eppendorf, Hamburg, Germany

3Institute for Scientific Phlebology, Krankenhaus Tabea, Hamburg, Germany

J Vasc Surg Venous Lymphat Disord. 2022 Jan;10(1):139-145.e1

 

Chronic venous disease is a frequent vascular condition. International societies have recommended the use of health-related quality of life (HRQoL) instruments in the assessment of patients with vascular diseases. Thus, the Freiburg Life Quality Assessment for chronic venous disease, 10-item questionnaire (FLQA-VS-10) was developed. The aim of the present study was to validate the FLQA-VS-10 in a prospective study.

Development and validation of an outcome instrument measuring dry skin - the Xerosis Area and Severity Index (XASI).

R. Sommer, M. Augustin, N. da Silva, C.C. von Stülpnagel

Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

J Eur Acad Dermatol Venereol. 2022 Jan;36(1):e70-e72

 

The aim of this study was the development and validation of a composite measuring instrument for the assessment of the extent (surface area affected) and severity of xerosis in clinical practice and research.