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Out-of-Pocket Costs in Alopecia Areata: A Cross-Sectional Study in German-speaking Countries

J. Kullab, MC. Schielein, CFZ. Stuhlmann, L. Tizek, H. Wecker, A. Kain,  T. Biedermann, A. Zink

Alopecia areata is a common skin disease which is associated with psychosocial and financial burden. No curative therapy exists and, hence, affected persons resort to self-financed cosmetic solutions. However, studies on the economic impact of alopecia areata on individuals are limited. To estimate annual individual out-of-pocket costs in persons with alopecia areata, a cross-sectional study using a standardized online questionnaire was performed in Germany, Austria and Switzerland. 

PMID:
36598280
DOI:
https://doi.org/10.2340/actadv.v103.4441

Social and sexual well-being among young adults coping with stigma of visible chronic skin disease

C.F.Z. Stuhlmann

Oral presentation presented at the European Health Psychology Society Conference (EHPS), Bremen, Germany

Entstigmatisierung von Menschen mit Hauterkrankungen in gesundheitsnahen Berufen: Eine randomisierte, kontrollierte Interventionsstudie

J. Traxler, C. C. Braren-von Stülpnagel, M. Augustin, M. Grosser & R. Sommer

Oral presentation presented at the 22nd DKVF Conference, Berlin, Germany

Associations between disease burden and mental health outcomes in male and female patients with anogenital psoriasis: the mediating role of social avoidance and cognitive distraction coping

N. da Silva, M. Augustin, R. Sommer

Poster presented at the EADV Congress 2023, Berlin, Germany.

A Structured Intervention for Medical Students Significantly Improves Awareness of Stigmatisation in Visible Chronic Skin Diseases: A Randomised Controlled Trial

R. Sommer1, N-A. Weinberger2, R. Von Spreckelsen3, U. Mrowietz3,  M. C. Schielein4, C. Luck-Sikorski2 , M. Augustin1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg,

2Research group: Chronic diseases and psychological health (COPE), SRH University of Applied Health Sciences, Gera

3Psoriasis-Center Kiel, Department of Dermatology, Venereology and Allergology, University Medical Center Schleswig-Holstein, Campus Kiel, Kiel

4Department of Dermatology and Allergology, Faculty of Medicine, Technical University of Mun

Acta Derm Venereol. 2022 Jan 31;102:adv00641.

 

People with visible skin diseases often experience stigmatisation. The aim of this study was to develop and evaluate an intervention for medical students to counter the stigmatisation of people with skin diseases. A 3-h intervention was developed, including self-experience, education and a patient encounter. Effectiveness regarding outcomes was assessed at 3 time points: before and immediately after the intervention, and at 3-month follow-up. Data from 127 participants were analysed. Regarding all outcomes, significant effects were observed in the intervention group, for
“social distance”, “agreement with negative stereotypes”, “agreement with disease-related misconceptions” and “intended behaviour”. These results should encourage medical faculties to invest in such courses to prevent stigmatisation.

PMID:
34904689
DOI:
10.2340/actadv.v101.894

Developments in quality of life assessment in children with dermatological conditions: Validation protocol for the German version of the InToDermQoL

J. Traxler, N. da Silva, M. Augustin, R. Fölster-Holst, R. Sommer (2022, October)

Poster presented at the DKVF Conference, Potsdam, Germany 

Dermatological care of elderly people with psoriasis before and after entering a nursing home: A qualitative analysis from the perspective of medical providers

 C.C. von Stülpnagel1, J. Petersen1, M. Augustin1, R. Sommer2

1Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Deutschland.

2Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Deutschland. r.sommer@uke.de.

Hautarzt. 2022 Apr 28.

 

Demografische Veränderungen bewirken einen steilen Anstieg der Anzahl der über 65-Jährigen. Damit verbunden ist die Zunahme der Anzahl pflegebedürftiger, multimorbid Erkrankter. National wie auch international gibt es keine Informationen insbesondere zur Versorgung von Psoriasiserkrankten im Setting Pflegeheim und zur Frage, wie diese durch den Eintritt in ein Pflegeheim beeinflusst wird.

PMID:
PMC9047578
DOI:
10.1007/s00105-022-04989-4

Disease burden and patient needs in women of childbearing age with psoriasis: retrospective analysis from the German PsoBest registries Psoriasis

N. da Silva, L. Westphal, M. Augustin, R. Sommer (2022, September)

ePoster presented at 31st European Academy of Dermatology and Venereology (EADV) Congress

A Systematic Review and Meta-analysis of Factors Associated with Stigma of Dermatologic Disease Psychodermatology and quality of life

CFZ. Stuhlmann, S. Lysakova, C. Jordan, T. Revenson, R. Sommer, L. Wilhelm (2022, September)

ePoster presented at 31st European Academy of Dermatology and Venereology (EADV) Congress

Patients' and physicians' perspectives of shared decision making for psoriasis systemic treatment: associations with sources of information and health literacy

N. da Silva, M. Augustin, S. Pohl, J. Traxler, R. Sommer (2022, September)

ePoster presented at 31st European Academy of Dermatology and Venereology (EADV) Congress

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