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Family dermatology life quality index (F-DLQI): German validation and applicability to parents of infants and toddlers with dermatological conditions

J. Traxler, N. da Silva Burger, M. Augustin, H. Ott, S. Hoffmann, R. Fölster-Holst, M. Baumeister, P. Staubach, R. Sommer

Parents of children with skin conditions face an additional caregiving burden and significant health-related quality of life (HRQoL) impairments. This study aimed to (1) test the psychometric properties of the German version of the Family Dermatology Life Quality Index (F-DLQI) in parents of infants and toddlers with any dermatological diagnosis and (2) examine the associations between the parents' and their children's HRQoL.

PMID:
41114754
DOI:
https://doi.org/10.1007/s00431-025-06494-x

Cumulative Life Course Impairment (CLCI): Messung der kumulierenden Lebensbelastungen bei Patienten mit Psoriasis in der Routineversorgung mit einem validierten Instrument

M. Augustin, R. Matthews, R. Warren, C. Braren-von Stülpnagel, A. Fatehi, M. Rudnik & R. Sommer

Poster presented at the conference of the German Dermatological Association (DDG), Berlin, Germany.

 

Patient-Reported Well-Being in Value-Based Routine Care Using Tildrakizumab: 52-week Interim Data of the Phase IV Positive Study

U. Mrowietz, R. Sommer, S. Gerdes, Z. Reguiai, W. Weger, E. Daudén, J.T. Maul, P.D. Ghislain, P.M. Laws, L. Naldi, E. De Jong, S. Mburu, V. Koscielny, E. Massana, A. Domenech, K. Gaarn du Jardin, I. Kasujee, M. Augustin

 

Psoriasis profoundly impairs patients' social, emotional, and physical condition, impacting on their overall well-being. Tildrakizumab is an interleukin-23p19 inhibitor labelled for the treatment of moderate-to-severe plaque psoriasis. The main objective of this study was to assess the effect of tildrakizumab on the overall well-being of people with psoriasis. Effectiveness, quality of life (QoL), symptomatology, treatment satisfaction, and the impact of psoriasis on the patients' partners were also evaluated.

PMID:
40605963
DOI:
https://doi.org/10.2147/ptt.s526748

Reduktion von stigmatisierenden Einstellungen bei Angehörigen körpernaher Berufe gegenüber Menschen mit Hauterkrankungen – Ergebnisse einer randomisiert-kontrollierten Studie

J. Traxler, M. Augustin, M. Grosser, D. Roggenkamp, C. Braren-von Stülpnagel & R. Sommer

Poster presented at the conference of the German Dermatological Association (DDG), Berlin, Germany.

 

The Global Research on the Impact of Dermatological Diseases (GRIDD) in Germany

N. da Silva Burger, R. Pattinson, N. Trialonis-Suthakharan, J. Austin, A. Fitzgerald, C. Bundy & M. Augustin 

Poster presented at the conference of the German Dermatological Association (DDG), Berlin, Germany.

 

Assessing Quality of Life in Infants and Toddlers with Dermatological Conditions – Validation of the InToDermQoL Questionnaire-German Version

J. Traxler, N. da Silva Burger, M. Augustin, H. Ott, S. Hoffmann, R. Fölster-Holst, M. Baumeister, P. Staubach, R. Sommer

Poster presented at the 34th EADV Congress, Paris, France

A Psychometric Evaluation of the Cumulative Life Course Impairment Questionnaire (DermCLCI-r) Among Patients with Chronic Skin Disease

C.F.Z. Stuhlmann, M. Augustin, R. Sommer

Poster presented at the 34th EADV Congress, Paris, France

Well-being in German patients with vitiligo in genital and visible areas - a pilot study

J. Ohlenbusch, R. Sommer, K. Steinbrink, M. Böhm

Only a few studies exist on the psychosocial impact of vitiligo in German patients, in particular those affected in genital and visible body areas. This monocentric pilot study aimed to assess well-being of adult patients with vitiligo and to compare sex, age, and clinical characteristics between patients with and without genital, facial and hand involvement.

PMID:
41063399
DOI:
https://doi.org/10.1111/ddg.15891

Analyse des neuen Derm-CLCI-r Fragebogens zur Erfassung kumulierender Krankheitsbelastungen bei Patienten mit atopischer Dermatitis

 R. Sommer, C. Willers, C. Grote,  R. Matthews, R. Warren & M. Augustin

Poster presented at the conference of the German Dermatological Association (DDG), Berlin, Germany.

 

Communication and Therapy Planning for Patients of Reproductive Age Under Immunomodulatory Treatments for Psoriasis or Psoriatic Arthritis-Survey of the German National Psoriasis Registry PsoBest

B. Stephan, C. Sorbe, B. Zyriax, J. Schmittinger, M. Augustin, R. Sommer, N. da Silva Burger, A. Weyergraf, R. von Kiedrowski, L. Kühl

During the systemic treatment of moderate to severe psoriasis in patients of reproductive age, contraindications and therapeutic peculiarities must be taken into account. Doctor-patient communication is crucial for therapy conduct and compliance. This survey among male and female patients from the German psoriasis registry, PsoBest, aims to provide real-world evidence on communication and patient needs for those of reproductive age (18-55).

PMID:
40361795
DOI:
https://www.mdpi.com/3289720
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