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Do children/adolescents with chronic health conditions have worse HrQoL than their healthy peers? A meta-analysis of studies using the KIDSCREEN questionnaires

N. da Silva, M. Pereira, C. Otto, U. Ravens-Sieberer, MC. Canavarro, M. Bullinger (2018, October). 

Oral communication presented at the ISOQOL 25th Annual Conference, Dublin, Ireland.

DOI:
10.13140/RG.2.2.14177.15208

Applications of the Kidcope questionnaires in pediatric settings: A developmental perspective in the evaluation of coping in children and adolescents

C. Carone, N. da Silva, H. Moreira, L. Barros, MC. Canavarro (2018, September)

Oral communication presented at the 10º congresso AIDAP/AIDEP: Diagnóstico e avaliação psicológica, Coimbra, Portugal

Quality of life in children and adolescents with short stature: Semantic validation and pilot study of the Portuguese versions of the QoLISSY questionnaires

N. da Silva, JP. Almeida, M. Bullinger, MF. Magalhães, MC. Canavarro (2018, September)

Oral communication presented at the 10º congresso AIDAP/AIDEP: Diagnóstico e avaliação psicológica, Coimbra, Portugal.

Versorgungsforschung in der Dermatologie 2018 – Kraft des Faktischen. Was Versorgungsforschung ist und wem sie dient

M. Augustin, I. Schäfer,  R. Sommer

Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Hamburg, Deutschland

Versorgungsforschung hat sich in Deutschland wie auch in den meisten anderen Ländern als eine weitere wich- tige Säule der Gesundheitsforschung gleich neben der experimentellen For- schung und der klinischen Forschung entwickelt. Mehr als alle anderen gesund- heitlichen Forschungsdisziplinen stellt sie den Bezug zur Routineversorgung auf der einen Seite und den regulato- rischen Bereichen der Versorgung wie Gesundheits- und Versorgungspolitik, Systemfinanzierung, Public Health und dem Sozialsystem auf der anderen Seite her.

PMID:
30215114
DOI:
10.1007/s00105-018-4274-7

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Differences between patient- and proxy-reported HRQoL using the Wound-QoL

R. Sommer1, C. Hampel-Kalthoff2, B. Kalthoff2, C. Neht1, E. Scherfer2, M. Winkler2, C. Blome1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2ORGAMed Dortmund GmbH, Dortmund, Germany

Wound Repair Regen. 2018 May;26(3):293-296

 

The purpose of this study was to examine the patient- and proxy-report agreement on the Wound-quality of life (QoL) questionnaire to assess health-related QoL in patients with chronic wounds. Patients and their proxies (in this case, relatives) were recruited via different nursing services in Germany and asked to complete the Wound-QoL.

PMID:
30118159
DOI:
10.1111/wrr.12662

„Schuppenflechte“ oder „Psoriasis“? Wortwahl und Bekanntheit der Fachbegriffe in der Öffentlichkeit

R. Sommer1, U. Mrowietz2 , N. Zander1, M. Augustin1

1Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Hamburg, Deutschland

2Klinik für Dermatologie, Venerologie und Allergologie, Universitätsklinikum Schleswig-Holstein, Campus Kiel, Kiel, Deutschland

Hautarzt. 2018 Dec;69(12):1050-1052

 

Eine zentrale Aufgabe der medizinischen Versorgung ist aus ärztlicher Sicht die hinreichende Einbeziehung und Aufklä- rung des Patienten in den therapeuti- schen Prozess. Hierzu gehört die Vermitt- lung von Informationen und Einsichten zur Erkrankung sowie zu den verschiede- nen möglichen Handlungsoptionen. Am Ende sollte hier eine informierte Ent- scheidung im Sinne der partizipativen Entscheidungsfindung stehen.

PMID:
30215113
DOI:
10.1007/s00105-018-4269-4

What is psoriasis? – Perception and assessment of psoriasis among the German population

R. Sommer1, U. Mrowietz2, M. Alexander Radtke1, I. Schäfer1, R. von Kiedrowski3, K. Strömer4, A. Enk5, J. Maul6, K. Reich7, N. Zander1, M. Augustin1

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Department of Dermatology, Venereology and Allergology, University Medical Center Schleswig-Holstein, Campus Kiel, Kiel, Germany

3Dermatology Practice Selters, Selters/Westerwald, Germany
4Group Practice for Dermatology and Allergology, Mönchengladbach, Germany

5Department of Dermatology, University Medical Center Heidelberg, Heidelberg, Germany
6Department of Dermatology, University Hospital Zurich, Zurich, Switzerland
7Dermatologikum Hamburg, Hamburg, Germany

J Dtsch Dermatol Ges. 2018 Jun;16(6):703-710

 

Delivery of health care to psoriasis patients plays an important role in the field of dermatology. Following the 2014 WHO resolution and the 2016 WHO glo- bal report, there has been an increase in the awareness of psoriasis among the general public. However, the perception of psoriasis by the general population remains uncle- ar. The goal of the present study was to investigate the perception and assessment of psoriasis among the German population.

PMID:
29873901
DOI:
10.1111/ddg.13539

Was ist Schuppenflechte? – Wahrnehmung und Bewertung der Psoriasis in der deutschen Bevölkerung

R. Sommer1, U. Mrowietz2, M. Alexander Radtke1, I. Schäfer1, R. von Kiedrowski3, K. Strömer4, A. Enk5, J. Maul6, K. Reich7, N. Zander1, M. Augustin1

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Department of Dermatology, Venereology and Allergology, University Medical Center Schleswig-Holstein, Campus Kiel, Kiel, Germany

3Dermatology Practice Selters, Selters/Westerwald, Germany
4Group Practice for Dermatology and Allergology, Mönchengladbach, Germany

5Department of Dermatology, University Medical Center Heidelberg, Heidelberg, Germany
6Department of Dermatology, University Hospital Zurich, Zurich, Switzerland
7Dermatologikum Hamburg, Hamburg, Germany

J Dtsch Dermatol Ges. 2018 Jun;16(6):703-710

 

DieVersorgungderPsoriasisvulgarisnimmtinderDermatologieeinen wichtigen Stellenwert ein. Im Zuge der WHO-Resolution 2014 und des WHO Global Reports 2016 hat die öffentliche Aufmerksamkeit für die Psoriasis zugenommen. Un- klar ist, wie Psoriasis in der Allgemeinbevölkerung wahrgenommen wird. Ziel ist die Erfassung der Wahrnehmung und Bewertung von Psoriasis in der Bevölkerung.

PMID:
29873919
DOI:
10.1111/ddg.13539_g

Quality of Life in Adolescent Boys with Idiopathic Short Stature: Positive Impact of Growth Hormone and Aromatase Inhibitors

M. Bullinger1, J. Bloemeke2, V. Mericq3, R. Sommer1, X. Gaete3, J. L. Ross4, Y M. Yu5, J. Permuy6, P. Gagliardi6, Y. L. Damaso6, N. Mauras6

1University Clinic Hamburg-Eppendorf, Hamburg, Germany

2University Clinic Hamburg-Eppendorf, Hamburg, Germany, j.bloemeke@uke.de

3Division of Endocrinology, University of Santiago, Santiago, Chile

4Division of Endocrinology, Nemours Children's Health System, Philadelphia, Pennsylvania, USA

5Division of Endocrinology, Nemours Children's Health System, Orlando, Florida, USA

6Division of Endocrinology, Nemours Children's Health System, Jacksonville, Florida, USA

Horm Res Paediatr. 2018;90(6):381-392

 

The combination of growth hormone (GH) and aromatase inhibitors (AI) improves linear growth in severely short adolescent boys; however, the effects of this interven- tion on quality of life (QoL) are unknown. This study assesses whether GH, AI, or their combination impacts the QoL of ad- olescent males with idiopathic short stature (ISS) from both the adolescent and the parent perspective.

PMID:
Epub 2019 Feb 28. 30820008
DOI:
10.1159/000496353

Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress

N. Silva1,2, M. Bullinger1, R. Sommer1, A. Rohenkohl1, S. Witt1, J. Quitmann1

1Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany

2Cognitive and Behavioral Center for Research and Intervention, Faculty of Psychology and Education Sciences, University of Coimbra, Coimbra, Portugal

Clin Psychol Psychother. 2018 Jan;25(1):e107-e118

 

On the basis of the multidimensional model of the caregiving process, this study aimed (a) to compare the levels of quality of life (QoL) and psychological problems of children with short stature and the levels of caregiving stress and QoL of their parents, between diagnostic, treatment, and current height deviation groups, and (b) to examine the direct and indirect links, via caregiving stress, between children's psychosocial functioning and their parents' QoL.

PMID:
Epub 2017 Sep 27. 28960605
DOI:
10.1002/cpp.2146
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