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Same language, different culture: Differential item functioning and factor structure of the DISABKIDS-37 questionnaire in Portuguese and Brazilian children/adolescents with asthma and diabetes

N. da Silva, CB. dos Santos, C. Carona, S. Nunes, H. Moreira, C. Fegadolli, MC. Canavarro, M. Bullinger (2018, October). 

Poster session presented at the ISOQOL 25th Annual Conference, Dublin, Ireland. 

DOI:
10.13140/RG.2.2.22985.19046

Sex-related impairments and patient needs in ano-genital psoriasis: Difficult to communicate topics and their impact on patient-centred care

N. da Silva, M. Augustin, A. Langenbruch, U. Mrowietz, K. Reich, D. Thaçi, W-H. Boehncke, N. Kirsten, A. Danckworth, R. Sommer (2019, October). 

Press briefing at the 28th European Academy of Dermatology and Venereology (EADV) Congress, Madrid, Spain.

Translating the WHA resolution in a member state: towards a German programme on 'Destigmatization' for individuals with visible chronic skin diseases

M. Augustin1, U. Mrowietz2, C. Luck-Sikorski3,4, R. von Kiedrowski5, S. Schlette6, M.A. Radtke1, S.M. John7, A. Zink8, N. Suthakharan1, R. Sommer1, for the German ECHT research group

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Department of Dermatology, Venereology and Allergology, Psoriasis-Center, University Medical Center Schleswig-Holstein, Kiel, Germany

3SRH University of Applied Health Sciences Gera, Gera, Germany

4Integrated Research and Treatment Center (IFB) Adiposity Diseases, University Hospital Leipzig, Leipzig, Germany

5Dermatological Practice Selters, Selters, Germany

6Professional Association of German Dermatologists (BVDD), Berlin, Germany

7Department of Dermatology, Environmental Medicine, Health Theory, Institute for Interdisciplinary Dermatological Prevention and Rehabilitation (iDerm), University of Osnabrueck, Osnabrueck, Germany

8Department of Dermatology and Allergology, Technical University of Munich, Munich, Germany

J Eur Acad Dermatol Venereol. 2019 Nov;33(11):2202-2208

 

Even today, a substantial number of individuals with visible skin diseases still suffer from incomprehension and stigmatization. About 10 million people are affected by such diseases in Germany. The WHO strongly urges member states to take measures against stigmatization in skin diseases.

PMID:
Epub 2019 Jul 8. 31087405
DOI:
10.1111/jdv.15682

Identifying specific patient needs and treatment goals in chronic spontaneous urticaria for a patient-centered clinical decision-making process.

R. Sommer, M. Augustin, A. Langenbruch, M. Maurer, P. Staubach, N. da Silva (2019, October). 

28th European Academy of Dermatology and Venereology Congress 2019 (Oral presentation): FC07.08

Factors influencing health related quality of lfe in children/adolescents with growth hormone deficiency

C. Drosatou, E-A. Vlachopapadopoulou, M. Bullinger, J. Quitmann, N. da Silva, S. Michalacos, K. Tsoumakas (2018, September)

Poster session presented at the 57th Annual Meeting of the European Society of Paediatric Endocrinology (ESPE), Athens, Greece.

Cross-cultural comparison of pediatric asthma-related quality of life between Portugal and other European countries: Measurement invariance and differential item functioning of the DISABKIDS Asthma Module

N. da Silva, C. Carona, MC. Canavarro, M. Bullinger (2018, September). 

Poster session presented at the European Pediatric Psychology Conference 2018, Ghent, Belgium.

DOI:
10.13140/RG.2.2.34135.32168

Umsetzung der WHO Psoriasis - Resolution in die Öffentlichkeit: ein bundesweites Programm gegen Stigmatisierung bei chronisch sichtbaren Hauterkrankungen

 M. Augustin, U. Mrowietz, C. Luck-Sikorski, R. von Kiedrowski, S. Schlette, M. Radtke, SM. John, A. Zink, N. Suthakaran, R. Sommer (2018, October). 

17. Deutscher Kongress für Versorgungsforschung 2018: P230

Translating the WHO psoriasis resolution into the public: the German federal program against stigmatization 2018-2020

M. Augustin, U. Mrowietz, C. Luck-Sikorski, R. von Kiedrowski, S. Schlette, M. Radtke, SM. John, A. Zink, N. Suthakaran, R. Sommer (2018, October). 

Annual Conference of the International Society for Quality of Life Research 2018: ID2044

Do children/adolescents with chronic health conditions have worse HrQoL than their healthy peers? A meta-analysis of studies using the KIDSCREEN questionnaires

N. da Silva, M. Pereira, C. Otto, U. Ravens-Sieberer, MC. Canavarro, M. Bullinger (2018, October). 

Oral communication presented at the ISOQOL 25th Annual Conference, Dublin, Ireland.

DOI:
10.13140/RG.2.2.14177.15208

Applications of the Kidcope questionnaires in pediatric settings: A developmental perspective in the evaluation of coping in children and adolescents

C. Carone, N. da Silva, H. Moreira, L. Barros, MC. Canavarro (2018, September)

Oral communication presented at the 10º congresso AIDAP/AIDEP: Diagnóstico e avaliação psicológica, Coimbra, Portugal

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