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Umsetzung der WHA-Resolution in Deutschland: Entwicklung, Erprobung und Evaluation von Interventionen zur Entstigmatisierung von Menschen mit sichtbaren chronischen Hauterkrankungen

R. Sommer, S. Mrowietz, R. von Spreckelsen , U. Mrowietz, C. Luck-Sikorski, N. Weinberger , M. Augustin

19. Deutscher Kongress für Versorgungsforschung 2020 (Oral presentation): ID142

Sex-related impairment and patient needs/ benefits in anogenital psoriasis: Difficult-to- communicate topics and their impact on patient-centred care

N. da Silva1, M. Augustin1, A. Langenbruch1, U. Mrowietz2, K. Reich1, D. Thaçi3, W. Boehncke4, N. Kirsten1, A. Danckworth1, R. Sommer1

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Psoriasis-Center, Department of Dermatology, University Medical Center Schleswig-Holstein, Kiel, Germany

3Institute and Comprehensive Centre Inflammation Medicine,University of Lübeck,Lübeck, Germany

4Division of Dermatology and Venereology, Geneva University Hospitals, Geneva, Switzerland

PLoS One. 2020 Jul 1;15(7):e0235091

 

Genital psoriasis affects 2-5% of psoriasis patients; generalised plaque or intertriginous psoriasis also affects the genital area in 29-40% of cases. Anogenital psoriasis has been associated with significant quality of life impairments, but little is known about specific patient needs/treatment goals. This study aimed to examine the overall and sex-related disease burden, patient needs and treatment benefits in patients with anogenital psoriasis, compared to patients with psoriasis not affecting the anal/genital areas.

PMID:
32609733
DOI:
10.1371/journal.pone.0235091

Impact of moderate to severe pruritus in patients with psoriasis: Association between disease burden, patient needs and interpersonal experiences


R. Sommer, M. Augustin, C. Hilbring, S. Ständer, M. Hubo, HJ. Hutt, C. von Stülpnagel, N. da Silva

19. Deutscher Kongress für Versorgungsforschung 2020 (Oral presentation): ID285

Translating the WHA resolution in a member state: Development, testing, and evaluation of interventions against stigmatization of people with visible skin diseases.

R. Sommer, S. Mrowietz, R. von Spreckelsen , U. Mrowietz, C. Luck-Sikorski, N. Weinberger, M. Augustin (2020, September).

29th European Academy of Dermatology and Venereology Congress 2020 (Oral presentation): ID680

Stigmatisierung durch Haarausfall – eine systematische Literaturübersicht

M. C. Schielein1, L. Tizek1, S. Ziehfreund1, R. Sommer2, T. Biedermann1, A. Zink1

1Klinik und Poliklinik für Dermatolo- gie und Allergologie am Biederstein, Fakultät für Medizin, Technische Universität München

2Institut für Versorgungsforschung in der Dermatologie und bei Pflege- berufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Hamburg

J Dtsch Dermatol Ges. 2020 Dec;18(12):1357-1369

 

Haarausfall ist ein Symptom, das Stigmatisierung und starke Einbußen in der Lebens- qualität mit sich bringen kann. Ziel dieser systematischen Übersichtsarbeit war es, die Literatur zum Thema Stigmatisierung bei Haarausfall auszuwerten. Mit vordefinier- ten MeSH-Begriffen und Schlagwörtern wurde eine systematische Suche in den Da- tenbanken MEDLINE (PubMed), EMBASE, PsycINFO und PsycNET durchgeführt.

Hair loss is a symptom that can cause stigmatization and severe impairment of qua- lity of life. The aim of this systematic review was to evaluate the literature on stig- matization of hair loss. Using predefined MeSH terms and keywords, a systematic search was performed in the databases MEDLINE (PubMed), EMBASE, PsycINFO and PsycNET.

PMID:
33373136
DOI:
10.1111/ddg.14234_g

Assessing HRQoL in chronic wounds across countries: The cross-cultural validity of the revised Wound-QoL questionnaire

C. Von Stülpnagel, N. da Silva, M. Augustin, C. van Montfrans, C. Fife, AM.  Fagerdahl,  A. Gamus, E. Conde Montero, TM. Klein, C. Blome , R. Sommer (2020, September). 

29th European Academy of Dermatology and Venereology Congress 2020 (Oral presentation): ID1153

Xerosis cutis, weit mehr als nur „Trockene Haut“?

R. Sommer, M. Augustin, N. da Silva, L. Schmidt, G. Nippel, C. von Stülpnagel (2020, October)

UKE-Studie deckt psychosoziale Belastungen Betroffener auf. DERM 2020 (invited talk)

Assessing HRQoL in chronic wounds across countries: The cross-cultural validity of the revised Wound-QoL questionnaire

C. Von Stülpnagel, N. da Silva, M. Augustin, C. van Montfrans, C. Fife, AM. Fagerdahl, A. Gamus, E. Conde Montero, TM. Klein, C. Blome, R. Sommer (2020, October).

Annual Conference of the International Society for Quality of Life Research 2020 (Oral presentation): IDB202.6

Stigmatization caused by hair loss – a systematic literature review

M. C. Schielein1, L. Tizek1, S. Ziehfreund1, R. Sommer2, T. Biedermann1, A. Zink1

1Department of Dermatology and Allergology, Faculty of Medicine, Technical University of Munich, Munich, Germany

2Institute for Health Services Re- search in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

J Dtsch Dermatol Ges. 2020 Dec;18(12):1357-1368

 

Hair loss is a symptom that can cause stigmatization and severe impairment of quality of life. The aim of this systematic review was to evaluate the literature on stigmatization of hair loss. Using predefined MeSH terms and keywords, a systematic search was performed in the databases MEDLINE (PubMed), EMBASE, PsycINFO and PsycNET.

PMID:
Epub 2020 Oct 4. 33015951
DOI:
10.1111/ddg.14234

Significance and extent of stigmatization against persons with visible skin conditions in the public

R. Sommer, M. Augustin (2019, October). 

28th European Academy of Dermatology and Venereology Congress 2019 (Oral presentation): OP05.05

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