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Translating the WHA resolution in a member state: Development, testing, and evaluation of interventions against stigmatization of people with visible skin diseases.

R. Sommer, S. Mrowietz, R. von Spreckelsen , U. Mrowietz, C. Luck-Sikorski, N. Weinberger, M. Augustin (2020, September).

29th European Academy of Dermatology and Venereology Congress 2020 (Oral presentation): ID680

Stigmatisierung durch Haarausfall – eine systematische Literaturübersicht

M. C. Schielein1, L. Tizek1, S. Ziehfreund1, R. Sommer2, T. Biedermann1, A. Zink1

1Klinik und Poliklinik für Dermatolo- gie und Allergologie am Biederstein, Fakultät für Medizin, Technische Universität München

2Institut für Versorgungsforschung in der Dermatologie und bei Pflege- berufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Hamburg

J Dtsch Dermatol Ges. 2020 Dec;18(12):1357-1369

 

Haarausfall ist ein Symptom, das Stigmatisierung und starke Einbußen in der Lebens- qualität mit sich bringen kann. Ziel dieser systematischen Übersichtsarbeit war es, die Literatur zum Thema Stigmatisierung bei Haarausfall auszuwerten. Mit vordefinier- ten MeSH-Begriffen und Schlagwörtern wurde eine systematische Suche in den Da- tenbanken MEDLINE (PubMed), EMBASE, PsycINFO und PsycNET durchgeführt.

Hair loss is a symptom that can cause stigmatization and severe impairment of qua- lity of life. The aim of this systematic review was to evaluate the literature on stig- matization of hair loss. Using predefined MeSH terms and keywords, a systematic search was performed in the databases MEDLINE (PubMed), EMBASE, PsycINFO and PsycNET.

PMID:
33373136
DOI:
10.1111/ddg.14234_g

Assessing HRQoL in chronic wounds across countries: The cross-cultural validity of the revised Wound-QoL questionnaire

C. Von Stülpnagel, N. da Silva, M. Augustin, C. van Montfrans, C. Fife, AM.  Fagerdahl,  A. Gamus, E. Conde Montero, TM. Klein, C. Blome , R. Sommer (2020, September). 

29th European Academy of Dermatology and Venereology Congress 2020 (Oral presentation): ID1153

Xerosis cutis, weit mehr als nur „Trockene Haut“?

R. Sommer, M. Augustin, N. da Silva, L. Schmidt, G. Nippel, C. von Stülpnagel (2020, October)

UKE-Studie deckt psychosoziale Belastungen Betroffener auf. DERM 2020 (invited talk)

Assessing HRQoL in chronic wounds across countries: The cross-cultural validity of the revised Wound-QoL questionnaire

C. Von Stülpnagel, N. da Silva, M. Augustin, C. van Montfrans, C. Fife, AM. Fagerdahl, A. Gamus, E. Conde Montero, TM. Klein, C. Blome, R. Sommer (2020, October).

Annual Conference of the International Society for Quality of Life Research 2020 (Oral presentation): IDB202.6

Stigmatization caused by hair loss – a systematic literature review

M. C. Schielein1, L. Tizek1, S. Ziehfreund1, R. Sommer2, T. Biedermann1, A. Zink1

1Department of Dermatology and Allergology, Faculty of Medicine, Technical University of Munich, Munich, Germany

2Institute for Health Services Re- search in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

J Dtsch Dermatol Ges. 2020 Dec;18(12):1357-1368

 

Hair loss is a symptom that can cause stigmatization and severe impairment of quality of life. The aim of this systematic review was to evaluate the literature on stigmatization of hair loss. Using predefined MeSH terms and keywords, a systematic search was performed in the databases MEDLINE (PubMed), EMBASE, PsycINFO and PsycNET.

PMID:
Epub 2020 Oct 4. 33015951
DOI:
10.1111/ddg.14234

Significance and extent of stigmatization against persons with visible skin conditions in the public

R. Sommer, M. Augustin (2019, October). 

28th European Academy of Dermatology and Venereology Congress 2019 (Oral presentation): OP05.05

Disease burden and patient needs in emerging adults and adults with psoriasis: Addressing developmental specificities for person-centered healthcare.

N. da Silva, M. Augustin, A. Langenbruch, A. Dankworth, R. Sommer (2019, October).

Oral communication presented at the 18. Deutscher Kongress für Versorgungsforschung (DKVF): Gemeinsam Verantwortung übernehmen für ein lernendes Gesundheitssystem, Berlin, Germany.

DOI:
10.13140/RG.2.2.12807.14247

Quality of life profile in children/adolescents with chronic conditions: A meta-analysis with the KIDSCREEN questionnaires

N. da Silva, M. Pereira, C. Otto, U. Ravens-Sieberer, MC. Canavarro, M. Bullinger (2019, September). 

Oral communication presented at the 14. Kongress der Fachgruppe Gesundheitspsychologie: Gesundheitspsychologie - individualisiert, bevölkerungsbezogen und versorgungsrelevant?, Greifswald, Germany.

Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment

J. Bloemeke1, N. Silva2,3, M. Bullinger2, S. Witt2, H-G. Dörr4, J. Quitmann2

1Center for Psychosocial Medicine, Institute for Medical Psychology, University Medical Center Hamburg-Eppendorf in Hamburg, Hamburg, Germany. j.bloemeke@uke.de

2Center for Psychosocial Medicine, Institute for Medical Psychology, University Medical Center Hamburg-Eppendorf in Hamburg, Hamburg, Germany

3Center for Research in Neuropsychology and Cognitive and Behavioral Intervention (CINEICC), Faculty of Psychology and Education Sciences, University of Coimbra, Coimbra, Portugal

4Clinic for Children and Adolescents, University Hospital Erlangen-Nurnberg, Erlangen, Germany

Health Qual Life Out. 2019;17:49

 

The Quality of Life of Short Stature Youth (QoLISSY) questionnaire is a patient- and parent-reported outcome measure assessing health-related quality of life (HRQOL) in short stature youth. This study evaluates the psychometric properties of the QoLISSY questionnaire within a German prospective trial of short statured children treated with human growth hormone (hGH).

PMID:
30885197
DOI:
10.1186/s12955-019-1118-9
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