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Cumulative Life Course Impairment – systematisches Review zur Bestimmung von Indikatoren

C. von Stülpnagel, L. Düpmann, N. da Silva, M. Augustin, R. Sommer (2020, September)

19. Deutscher Kongress für Versorgungsforschung 2020: ID215

Xerosis cutis, weit mehr als nur „Trockene Haut“?

R. Sommer, M. Augustin, N. da Silva, L. Schmidt, G. Nippel, C. von Stülpnagel (2020, October)

UKE-Studie deckt psychosoziale Belastungen Betroffener auf. DERM 2020 (invited talk)

Xerosis cutis und Stigmatisierung: Patientensicht bei Hauterkrankungen und Erkenntnisse über die Auswirkungen einer Hautpflege

C. von Stülpnagel, N. da Silva, G. Nippel, M. Augustin, R. Sommer (2020, September)

19. Deutscher Kongress für Versorgungsforschung 2020: ID206

Impact of pruritus in patients with psoriasis: Associations between disease burden, patient needs and interpersonal experiences

N. da Silva, M. Augustin, S. Ständer, C. von Stülpnagel, M. Hubo, C. Hilbring, HJ. Hutt, R. Sommer (2020, February). 

Poster session presented at the Dermatologie KOMPAKT & PRAXISNAH 2020, Dresden, Germany. 

DOI:
10.13140/RG.2.2.24617.34405

Perception and determinants of stigmatization of people with psoriasis in the German population

R. Sommer1, J. Topp1, U. Mrowietz2, N. Zander1, M. Augustin1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Psoriasis-Center at the Department of Dermatology, University Medical Center Schleswig-Holstein, Kiel, Germany

J Eur Acad Dermatol Venereol. 2020 Dec;34(12):2846-2855

 

Perception of psoriasis in the general population is characterized by knowledge deficits and prejudice against those affected. The extent and possible predictors of stigmatizing attitudes remain unclear.

PMID:
32277524
DOI:
10.1111/jdv.16436

Gesundheitsökonomie und personenzentrierte Versorgung chronischer Wunden in Deutschland

M. Augustin, R. Sommer

Dissemond J, Kröger K, Initiative Chronische Wunden e. V. (Hrsgg): Chronische Wunden: Diagnostik - Therapie - Versorgung. München: Urban & Fischer Verlag 2020: 419-428.

Characterizing treatment-related patient needs in atopic eczema: insights for personalized goal orientation

M Augustin1, A Langenbruch1, C Blome1, M Gutknecht1, T Werfel2, S Ständer3, S Steinke3, N Kirsten1, N Silva1, R Sommer1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Division of Immunodermatology and Allergy Research, Department of Dermatology and Allergy, Hannover Medical School, Hanover, Germany

3Center for Chronic Pruritus, Department of Dermatology, University Hospital Muenster, Muenster, Germany

J Eur Acad Dermatol Venereol. 2020 Jan;34(1):142-152

 

Atopic eczema (AE) is a common and burdensome chronic skin disease. Clinical guidelines suggest an evidence-based, personalized and stepwise treatment approach. Only few studies have so far focused on the specific patient needs in treatment.

PMID:
31465587
DOI:
10.1111/jdv.15919

Instrumentenentwicklung und -bewertung): Bestimmung der transnationalen gesundheitsbezogenen Lebensqualität: Die kulturübergreifende Validität des überarbeiteten Wound-QoL-Fragebogens


19. Deutscher Kongress für Versorgungsforschung 2020 (Oral presentation): ID119

Umsetzung der WHA-Resolution in Deutschland: Entwicklung, Erprobung und Evaluation von Interventionen zur Entstigmatisierung von Menschen mit sichtbaren chronischen Hauterkrankungen

R. Sommer, S. Mrowietz, R. von Spreckelsen , U. Mrowietz, C. Luck-Sikorski, N. Weinberger , M. Augustin

19. Deutscher Kongress für Versorgungsforschung 2020 (Oral presentation): ID142

Sex-related impairment and patient needs/ benefits in anogenital psoriasis: Difficult-to- communicate topics and their impact on patient-centred care

N. da Silva1, M. Augustin1, A. Langenbruch1, U. Mrowietz2, K. Reich1, D. Thaçi3, W. Boehncke4, N. Kirsten1, A. Danckworth1, R. Sommer1

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Psoriasis-Center, Department of Dermatology, University Medical Center Schleswig-Holstein, Kiel, Germany

3Institute and Comprehensive Centre Inflammation Medicine,University of Lübeck,Lübeck, Germany

4Division of Dermatology and Venereology, Geneva University Hospitals, Geneva, Switzerland

PLoS One. 2020 Jul 1;15(7):e0235091

 

Genital psoriasis affects 2-5% of psoriasis patients; generalised plaque or intertriginous psoriasis also affects the genital area in 29-40% of cases. Anogenital psoriasis has been associated with significant quality of life impairments, but little is known about specific patient needs/treatment goals. This study aimed to examine the overall and sex-related disease burden, patient needs and treatment benefits in patients with anogenital psoriasis, compared to patients with psoriasis not affecting the anal/genital areas.

PMID:
32609733
DOI:
10.1371/journal.pone.0235091
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