Publications

Filter by type

Filter by year

Showing all years

Identifying Predictors and Correlates of Skin Disease Self-Stigma for Online RCT Intervention: A systematic review

CFZ. Stuhlmann, J. Traxler, V. Paucke, R. Sommer

Poster presented at the 52. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG-Tagung), Berlin, Germany.

Disease burden and patient needs in women of childbearing age with psoriasis: a comparative study with same-age men and older women using data from the German PsoBest registries

N. da Silva

52. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG-Tagung), Berlin, Germany (Oral presentation): ID FV01/04

Assessment of cumulative life course impairment in dermatology (PP16)

J. Traxler, R. Sommer, M. Augustin & C.C. Braren-von Stülpnagel

Poster presented at the conference of the European Society for Dermatology and Psychiatry (ESDaP), Rotterdam, the Netherlands

Tackling self-stigmatisation in people with visible chronic skin diseases - a systematic review and development of an online intervention

J. Traxler, C.F.Z. Stuhlmann, L. Westphal, H. Graf & R. Sommer

Oral presentation presented at the 25th World Congress of Dermatology, Singapore

Patient-reported Well-being in Value-based Care Using Tildrakizumab in a Real-world Setting: Protocol of a Multinational, Phase IV, 1-cohort Prospective Observational Study (the POSITIVE Study)

M. Augustin, R. Sommer, E. Daudén, P. Laws, E. de Jong, G. Fabbrocini, L. Naldi, A. Navarini, J. Lambert, Z. Reguiai, S. Gerdes, E. Massana, T. Obis, I. Kasujee, U. Mrowietz

Psoriasis is a chronic inflammatory skin disease that negatively impacts the quality of life of patients and their families. However, the most commonly used decision-making tools in psoriasis, Psoriasis Area and Severity Index (PASI), Physician Global Assessment (PGA) and Dermatology Life Quality Index (DLQI), do not fully capture the impact of psoriasis on patients' lives. In contrast, the well-established 5-item WHO Well-being Index (WHO-5) assesses the subjective psychological well-being of patients. Moreover, while drug innovations became available for psoriasis, data on the impact of these therapies on patients' lives and their closest environment (family, physicians) are limited. This study will assess the effect of tildrakizumab, an interleukin-23p19 inhibitor, on the overall well-being of patients with moderate-to-severe psoriasis. Moreover, the long-term benefit of tildrakizumab on physicians' satisfaction and partners' lives of patients with psoriasis will be evaluated.

Current Evidence in Psychodermatology on the Stigmatizing Experience of Visible Skin Diseases: A Meta-analysis Review

CFZ. Stuhlmann, S. Lysakova, C. Jordan, TA. Revenson, R. Sommer, LO. Wilhelm (2022, August)

Poster presented at the European Health Psychology Society Conference, Bratislava, Slovakia 

A Structured Intervention for Medical Students Significantly Improves Awareness of Stigmatisation in Visible Chronic Skin Diseases: A Randomised Controlled Trial

R. Sommer1, N-A. Weinberger2, R. Von Spreckelsen3, U. Mrowietz3,  M. C. Schielein4, C. Luck-Sikorski2 , M. Augustin1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg,

2Research group: Chronic diseases and psychological health (COPE), SRH University of Applied Health Sciences, Gera

3Psoriasis-Center Kiel, Department of Dermatology, Venereology and Allergology, University Medical Center Schleswig-Holstein, Campus Kiel, Kiel

4Department of Dermatology and Allergology, Faculty of Medicine, Technical University of Mun

Acta Derm Venereol. 2022 Jan 31;102:adv00641.

 

People with visible skin diseases often experience stigmatisation. The aim of this study was to develop and evaluate an intervention for medical students to counter the stigmatisation of people with skin diseases. A 3-h intervention was developed, including self-experience, education and a patient encounter. Effectiveness regarding outcomes was assessed at 3 time points: before and immediately after the intervention, and at 3-month follow-up. Data from 127 participants were analysed. Regarding all outcomes, significant effects were observed in the intervention group, for
“social distance”, “agreement with negative stereotypes”, “agreement with disease-related misconceptions” and “intended behaviour”. These results should encourage medical faculties to invest in such courses to prevent stigmatisation.

Dermatological care of elderly people with psoriasis before and after entering a nursing home: A qualitative analysis from the perspective of medical providers

 C.C. von Stülpnagel1, J. Petersen1, M. Augustin1, R. Sommer2

1Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Deutschland.

2Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Deutschland. r.sommer@uke.de.

Hautarzt. 2022 Apr 28.

 

Demografische Veränderungen bewirken einen steilen Anstieg der Anzahl der über 65-Jährigen. Damit verbunden ist die Zunahme der Anzahl pflegebedürftiger, multimorbid Erkrankter. National wie auch international gibt es keine Informationen insbesondere zur Versorgung von Psoriasiserkrankten im Setting Pflegeheim und zur Frage, wie diese durch den Eintritt in ein Pflegeheim beeinflusst wird.

Parents with Asthmatic Children, Quality of Life

C. Crespo1, N. da Silva1,2 

1Faculty of Psychology and Educational Sciences, University of Coimbra, Coimbra, Portugal

2 University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

Encyclopedia entry: Encyclopedia of Quality of Life and Well-Being Research

Is Social Stigma Responsible for the Poor Psychological Adjustment of People with Visible Skin Disease? A Meta-Analysis

CFZ. Stuhlmann, S. Lysakova, C. Jordan, TA. Revenson (2022, April)

Poster preseted at the Society of Behavioral Medicine, Baltimore, MD.