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Reducing Self-Stigma and Fostering Acceptance in People Living with Chronic Skin Disease through an Online Program – Results of the HautKompass-RCT

J. Traxler, C.F.Z. Stuhlmann, N. da Silva Burger, C. Stierle, V. Djamei, A. Darzina, M. Augustin, M. Rudnik, M. Grosser, G. Pliszewksi, M. Böhm, C. Stenders, P. Staubach, D. Kasche, R. von Kiedrowski, A. Tsianakas, R. Sommer

Poster presented at the 34th EADV Congress, Paris, France

Effectiveness of the HautKompass Online Programme in Reducing Self-Stigma in People with Chronic Skin Diseases - A randomized controlled trial

J. Traxler, C.F.Z. Stuhlmann, N. da Silva Burger, C. Stierle, V. Djamei, A. Darzina, M. Rudnik & R. Sommer

Oral presentation presented at the 21st Congress of the European Society for Dermatology and Psychiatry, Istanbul, Turkey

Interdisciplinary care in immune-mediated inflammatory diseases with skin manifestations within the WHO's people-centred healthcare framework

R. Sommer, M. Augustin

Commentary on “Experience of patients and healthcare practitioners with interdisciplinary care in immune-mediated inflammatory diseases with skin manifestations: A systematic scoping review”.

PMID:
40277207
DOI:
https://doi.org/10.1111/jdv.20640

Responsiveness and Minimally Important Change of the Patient-Reported Impact of Dermatological Diseases (PRIDD) questionnaire

N. da Silva Burger, R. Pattinson, A. Fitzgerald, N. Trialonis-Suthakharan, J. Austin, C. Bundy, M. Augustin

Poster presented at the 34th EADV Congress, Paris, France

Health-Related Quality of Life in Infants and Toddlers with Dermatological Conditions and Their Parents – Validation of the German Version of the Family Dermatology Life Quality Index (F-DLQI)

J. Traxler, N. da Silva Burger, M. Augustin, H. Ott, S. Hoffmann, R. Fölster-Holst, M. Baumeister, P. Staubach, R. Sommer

Poster presented at the 34th EADV Congress, Paris, France

Implementation of a team-teaching seminar on the stigmatization and psychosocial burdens of people with visible skin diseases in the standard curriculum of medical studies

I. Heinen, R. Sommer, I. Hansen-Abeck, C. Blome, I. Heidrich, M. Härter, M. Augustin,  S.W. Schneider, F. Abeck, N. Booken

Stigmatization of people with visible skin diseases (VSD) is a widespread problem that can lead to severe psychosocial stress. Owing to its great significance, there is also a need to develop and evaluate teaching opportunities for medical students to address stigmatization and the resulting negative consequences. The development of the seminar was based on the 6-step Kern cycle. Through the collaboration of dermatologists, psychologists, and an expert on stigmatization in psoriasis, a team-teaching seminar concept on the stigmatization and psychosocial burden of people with psoriasis was developed and implemented in standard teaching at the University Medical Center Hamburg-Eppendorf.

PMID:
41103399
DOI:
https://doi.org/10.3205/zma001774

Well-being in German patients with vitiligo in genital and visible areas - a pilot study

J. Ohlenbusch, R. Sommer, K. Steinbrink, M. Böhm

Only a few studies exist on the psychosocial impact of vitiligo in German patients, in particular those affected in genital and visible body areas. This monocentric pilot study aimed to assess well-being of adult patients with vitiligo and to compare sex, age, and clinical characteristics between patients with and without genital, facial and hand involvement.

PMID:
41063399
DOI:
https://doi.org/10.1111/ddg.15891

Personal, Financial and Time Burden in Inherited Ichthyoses: A Survey of 144 Patients in a University-based Setting

C. Klein, V. Oji, R. Sommer, M. Augustin, S. Ständer, S. Salzmann, K. Kiekbusch, J. Bodes, M. F. Danzer, H. Traupe, J. Fischer, S. Steinke & K. Süßmuth

We investigated costs, time and disease burden of ichthyoses. The study addresses difficulties of the healthcare situation for patients with ichthyoses and reveals potential improvements.

PMID:
38523469
DOI:
https://doi.org/10.1111/jdv.19804

Psychosocial Burden in People with Atopic Dermatitis: Effects of a Substance-Free Basic Skincare in a Randomized Health Care Study

C.C. Braren-von Stülpnagel, M. Augustin, R. Sommer & L. Westphal

The aims of this study were to compare clinical and psychosocial parameters between patients with a different severity of atopic dermatitis and to analyse the effect of an omega-6-fatty-acid-skin therapy.

PMID:
38325354
DOI:
https://doi.org/10.1159/000536671

Socio-demographic diversity of the impact of dermatological diseases: Results from the patient-initiated Global Research on the Impact of Dermatological Disease (GRIDD) study

N. da Silva-Burger, R. Pattinson, N. Trialonis-Suthakharan, J. Austin, A. Fitzgerald, C. Bundy & M. Augustin

Oral presentation presented at the 31st Annual Conference of ISOQOL, Cologne, Germany

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