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Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress

N. Silva1,2, M. Bullinger1, R. Sommer1, A. Rohenkohl1, S. Witt1, J. Quitmann1

1Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany

2Cognitive and Behavioral Center for Research and Intervention, Faculty of Psychology and Education Sciences, University of Coimbra, Coimbra, Portugal

Clin Psychol Psychother. 2018 Jan;25(1):e107-e118

 

On the basis of the multidimensional model of the caregiving process, this study aimed (a) to compare the levels of quality of life (QoL) and psychological problems of children with short stature and the levels of caregiving stress and QoL of their parents, between diagnostic, treatment, and current height deviation groups, and (b) to examine the direct and indirect links, via caregiving stress, between children's psychosocial functioning and their parents' QoL.

PMID:
Epub 2017 Sep 27. 28960605
DOI:
10.1002/cpp.2146

The psychometric evaluation of the quality of life in short stature youth (QoLISSY) instrument for German children born small for gestational age

R. Sommer1, J. Blömeke2, M. Bullinger2, J. Quitmann2

1Department of Medical Psychology, Center for Psychosocial Medicine, University Medical Center Hamburg-Eppendorf, Martinistraße 52, 20246, Hamburg, Germany. r.sommer@uke.de

2Department of Medical Psychology, Center for Psychosocial Medicine, University Medical Center Hamburg-Eppendorf, Martinistraße 52, 20246, Hamburg, Germany

J Endocrinol Invest. 2018 Oct;41(10):1185-1191

 

This study aimed to validate the disease-specific “quality of life in short stature youth (QoLISSY)-instrument” that assessesQuery the health-related quality of life (HrQoL) in German children and adolescents diagnosed as small for gestational age (SGA) in a patient and parent report.

PMID:
Epub 2018 Feb 17. 29455392
DOI:
10.1007/s40618-018-0850-z

Establishing priorities for psychological interventions in pediatric settings: A decision- tree approach using the DISABKIDS-10 Index as a screening instrument

N. Silva1,2, M. Bullinger2, H.a Moreira1, M. Cr. Canavarro1, C. Carona1,3

1Cognitive and Behavioral Center for Research and Intervention, Faculty of Psychology and Education Sciences of the University of Coimbra, Coimbra, Portugal

2Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany

3Federation of Portuguese Cerebral Palsy Associations, Cerebral Palsy Association of Coimbra, Coimbra, Portugal

PLoS One. 2018;13(5):e0198402

 

Most children and adolescents with chronic health conditions have impaired health-related quality of life and are at high risk of internalizing and externalizing problems. However, few patients present clinically significant symptoms. Using a decision-tree approach, this study aimed to identify risk profiles for psychological problems based on measures that can be eas- ily scored and interpreted by healthcare professionals in pediatric settings.

PMID:
29852026
DOI:
10.1371/journal.pone.0198402

Development and validation of the Patient Benefit Index for peripheral arterial disease

N. Zander1, E-B. Demirel1, M. Augustin1, R. Sommer1, E. S. Debus2, P. Breuer3, C. Blome1

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Department of Vascular Medicine, University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

3Department of Vascular and Endovascular Surgery, Asklepios Klinik Wandsbek, Hamburg, Germany

Vasa. 2018 Apr;47(3):219-226

 

The aim of this study was to develop and validate a specific Patient Benefit Index (PBI) version for the treatment of peripheral arterial disease (PAD).

 

PMID:
Epub 2018 Jan 25. 29366378
DOI:
10.1024/0301-1526/a000687

Differences between patient- and proxy-reported HRQoL using the Wound-QoL

R. Sommer, Dr. Rer. Biol. Hum.1 ; C. Hampel-Kalthoff2; B. Kalthoff2; C. Neht, MSc1; E. Scherfer2; M. Winkler, Dr.2, C. Blome, Dr. Phil.1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2ORGAMed Dortmund GmbH, Dortmund, Germany

Wound Repair Regen. 2018 May;26(3):293-296

 

The purpose of this study was to examine the patient- and proxy-report agreement on the Wound-quality of life (QoL) questionnaire to assess health-related QoL in patients with chronic wounds.

PMID:
Epub 2018 Oct 11. 30118159
DOI:
10.1111/wrr.12662

Umsetzung der WHO Psoriasis - Resolution in die Öffentlichkeit: ein bundesweites Programm gegen Stigmatisierung bei chronisch sichtbaren Hauterkrankungen

M. Augustin, U. Mrowietz, C. Luck-Sikorski, R. von Kiedrowski, S. Schlette, M. Radtke, SM. John, A. Zink, N. Suthakaran, R. Sommer (2018, October).

17. Deutscher Kongress für Versorgungsforschung 2018: P230

HrQoL effects of growth-hormone treatment in short statured youth: A controlled prospective study

M. Bullinger, J. Bloemeke, N. da Silva, J. Quitmann, H-G. Dörr, The German QOLISSY Prospective Group (2018, October). 

Poster session presented at the ISOQOL 25th Annual Conference, Dublin, Ireland.

Translating the WHO psoriasis resolution into the public: the German federal program against stigmatization 2018-2020

M. Augustin, U. Mrowietz, C. Luck-Sikorski, R. von Kiedrowski, S.Schlette, M. Radtke, SM. John , Zink A, N. Suthakaran, R. Sommer (2018, October). 

Annual Conference of the International Society for Quality of Life Research 2018: ID2044

The assessment of pediatric health-related quality of life in eight European countries using DISABKIDS-37: Examining differential item functioning within a rasch model and contrasting outcomes

C. Carona, H. Moreira, MC. Canavarro, M. Bullinger, N. da Silva (2018, September). 

Poster session presented at the European Pediatric Psychology Conference 2018, Ghent, Belgium

DOI:
doi:10.13140/RG.2.2.12324.94083

Height perception of children with GH Deficiency: Influencing factors and links to psychosocial functioning

C. Drosatou, E-A. Vlachopapadopoulou, M. Bullinger, J. Quitmann, N. da Silva, S. Michalacos, K. Tsoumakas (2018, September)

Poster session presented at the 57th Annual Meeting of the European Society of Paediatric Endocrinology (ESPE), Athens, Greece.

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