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Exploring the burden of xerosis cutis and the impact of dermatological skin care from patient's perspective

C. C. von Stülpnagel1, M. Augustin1, N. da Silva1, L. Schmidt2, G.Nippel2, R. Sommer1

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Beiersdorf AG, Hamburg, Germany

J Dermatolog Treat. 2021 Sep 21:1-6

 

Xerosis cutis is recognized as a burdensome and stressful condition of the skin, resulting in impaired health-related quality of life (HRQoL). Therefore, it should be treated as a relevant skin disease with detailed care and treatment recommendations.

Mapping risk factors for cumulative life course impairment in patients with chronic skin diseases - a systematic review

C.C. von Stülpnagel, M. Augustin, L. Düpmann, N. da Silva , R. Sommer

German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany

 J Eur Acad Dermatol Venereol. 2021 Nov;35(11):2166-2184

 

Patients with chronic skin diseases suffer from physical and psychosocial impairments which can lead to a cumulative life-long burden. Therefore, the concept of cumulative life course impairment (CLCI) was introduced, referring to the non- reversible damage due to the persistent life-long burden. This systematic review (PROSPERO registry number: CRD42020179141) aimed at mapping the risk factors and the associated burden over time in patients with psoriasis, ato- pic dermatitis (AD) and hidradenitis suppurativa (HS).

Determining the Minimal Important Difference for the Wound-QoL Questionnaire

J. Topp1, C. Blome1, M. Augustin1, N. Mohr1, E. Sebastian Debus2, H. Diener2, R. Sommer1

1Institute for Health Services Research in Dermatology and Nursing (IVDP), German Center for Health Services Research in Dermatology (CVderm), University Medical Center Hamburg- Eppendorf (UKE), Hamburg, Germany

2Department of Vascular Medicine, University Medical Center Hamburg- Eppendorf (UKE), Hamburg, Germany

Patient Prefer Adherence. 2021 Jul 14;15:1571-1578

 

The questionnaire for the quality of life with chronic wounds (Wound-QoL) is a valid and reliable instrument to determine the disease-specific health-related QoL of patients with chronic wounds. For the interpretation of HRQoL scores, it is additionally important to know which differences in scores are considered meaningful. The minimal important difference (MID) is defined as a change in HRQoL that a patient would consider meaningful, such that the patient would judge a treatment to be beneficial and worthy of repeating.

Klinische Studien – Teil 1. Daten und Ergebnisse besser verstehen

C.C. von Stülpnagel, M. Augustin, R. Sommer

Der Deutsche Dermatologe 2021; 69 (2): 122-127

 

Klinische Studien liefern eine Menge an Daten. Wie kommen sie zustande und wie sind sie zu interpretieren? Dieser Beitrag stellt die Grundlagen aus Epidemiologie und klinischer Forschung vor. Teil zwei folgt dann in der März-Ausgabe des "Deutschen Dermatologen" und informiert über wichtige Studienarten.

Xerosis cutis und Stigmatisierung: Patientensicht bei Hauterkrankungen und Erkenntnisse über die Auswirkungen einer Hautpflege

C. von Stülpnagel, N. da Silva, L. Schmidt, G. Nippel, M. Augustin, Sommer (2021, April).

ePoster presented at 51. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG-Tagung), Berlin, Germany. [Virtual].

Bestimmung der transnationalen gesundheitsbezogenen Lebensqualität: Die kulturübergreifende Validität des überarbeiteten Wound-QoL-Fragebogens

C. von Stülpnagel, N. da Silva, M. Augustin, C. van Montfrans, C. Fife, AM. Fagerdahl, A. Gamus, TM. Klein, C. Bome, R. Sommer (2021, April). 

ePoster presented at 51. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG-Tagung), Berlin, Germany. [Virtual].

Klinische Studien – Teil 2. Daten kritisch bewerten können

C.C. Stülpnagel, M. Augustin, R. Sommer

Der Deutsche Dermatologe 2021; 69 (3): 36-42

 

Klinische Studien liefern eine Menge an Daten. Wie kommen sie zustande und wie sind sie zu interpretieren? Dieser Beitrag stellt die Grundlagen aus Epidemiologie und klinischer Forschung vor. Teil zwei folgt dann in der März-Ausgabe des "Deutschen Dermatologen" und informiert über wichtige Studienarten.

Skin Lesions, Skin Care, and Characteristics of Pruritus in Patients Undergoing Haemodialysis

R. Sommer1, S. Ständer2, M. Augustin1

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Department of Dermatology and Center for Chronic Pruritus, University Hospital of Münster, Münster, Germany

Skin Pharmacol Physiol. 2021 Sep 14

 

Pruritus has been shown to be a common and burdensome complaint in the general population. In some diseases, there is an even higher rate and intensity of pruritus such as in chronic kidney diseases. In particular, patients re- quiring dialysis commonly suffer from pruritus with propor- tions between 22.0 and 90.0%. Few data on the characteris- tics and burden of such pruritus have been published. There- fore, the aim of this study was to investigate the extent and profiles of pruritus in such patients related to skin lesions and care.

Topologie der Psoriasis. Eine Prävalenzanalyse aus Real-World-Daten im Längs- und Querschnitt

C. Sorbe, R. Sommer, N. Kirsten, A. Danckworth, L.  Kühl, M. Augustin

Haut 2021; 32 (5): 212-214

Secukinumab effects on disease burden, patient needs and benefits, and treatment satisfaction in patients with plaque psoriasis across European regions: patient perspective data from the PROSE study

N. da Silva1, R. Sommer1, C.-E. Ortmann2, P. Jagiello2, T. Bachhuber2, M. Augustin1

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany

2Novartis Pharma AG, Basel, Switzerland

J Eur Acad Dermatol Venereol. 2021 Nov;35(11):2241-2249

 

Cross-cultural differences in healthcare policies and patient–physician communication may influence the quality of care and patients’ perceived benefits and satisfaction with psoriasis treatment.