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Significance and extent of stigmatization against persons with visible skin conditions in the public

R. Sommer, M. Augustin (2019, October). 

28th European Academy of Dermatology and Venereology Congress 2019 (Oral presentation): OP05.05

Wahrnehmung und Prädiktoren von Vorurteilen bei Menschen mit Psoriasis

R. Sommer, J. Topp, U. Mrowietz, I. Schäfer, M. Radtke, R. von Kiedrowski, M. Augustin (2019, May). 

50. Jahrestagung der Deutschen Dermatologischen Gesellschaft 2019: P295

Disease burden and patient needs related to sensitive body areas in patients with psoriasis: Results from routine care

N. da Silva, M. Augustin, A. Langenbruch, A. Danckworth, R. Sommer (2019, May). 

Poster session presented at the 50. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG), Berlin, Germany. 

Characterising treatment-related patient needs in atopic eczema: Insights for personalised goal orientation

M. Augustin, A. Langenbruch, R. Reinert, C. Blome, M. Gutknecht, T. Werfel, S. Ständer, JT. Maul, S. Steinke, N. Kirsten, N. da Silva, R. Sommer (2019, May). 

Poster session presented at the 50. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG), Berlin, Germany

Characterizing treatment-related patient needs in atopic dermatitis: Insights for personalized goal orientation

M. Augustin, A. Langenbruch, R. Reinert, C. Blome, M. Gutknecht, T. Werfel, S. Ständer, S. Steinke, N. Kirsten, R. Sommer (2019, June). 

24th World Congress of Dermatology 2019: ID5339

Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)

J. Bloemeke1, R. Sommer1, S. Witt1, M. Dabs1, F.J.Badia2, M. Bullinger1, J. Quitmann1

1Department of Medical Psychology , Center for Psychosocial Medicine, University Medical Center Hamburg-Eppendorf , Hamburg , Germany

2Omakase Consulting , Barcelona , Spain

Disabil Rehabil. 2019 Jul;41(15):1815-1825

 

This study describes the psychometric testing of the Achondroplasia Personal Life Experience Scale (APLES): a new disease- and functioning-specific health-related quality of life instrument for young people with achondroplasia, which was developed based on the International Classification of Functioning-Children and Youth Version. 

Perception of stigmatization of people with psoriasis – a qualitative analyses from patients perspective, their relatives and health care providers

R. Sommer, M. Augustin, U. Mrowietz, J. Topp, I. Schäfer, R. von Spreckelsen (2019, June). 

24th World Congress of Dermatology 2019: ID5200

Merkmale und Determinanten von Patientenbedarfen bei der Behandlung von chronisch spontaner Urtikaria

R. Sommer, A. Langenbruch, M. Maurer, P. Staubach, M. Augustin (2019, May).

50. Jahrestagung der Deutschen Dermatologischen Gesellschaft 2019: P307 

Translating the WHA resolution in a member state: towards a German programme on 'Destigmatization' for individuals with visible chronic skin diseases

M. Augustin1, U. Mrowietz2, C. Luck-Sikorski3,4, R. von Kiedrowski5, S. Schlette6, M.A. Radtke1, S.M. John7, A. Zink8, N. Suthakharan1, R. Sommer1, for the German ECHT research group

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Department of Dermatology, Venereology and Allergology, Psoriasis-Center, University Medical Center Schleswig-Holstein, Kiel, Germany

3SRH University of Applied Health Sciences Gera, Gera, Germany

4Integrated Research and Treatment Center (IFB) Adiposity Diseases, University Hospital Leipzig, Leipzig, Germany

5Dermatological Practice Selters, Selters, Germany

6Professional Association of German Dermatologists (BVDD), Berlin, Germany

7Department of Dermatology, Environmental Medicine, Health Theory, Institute for Interdisciplinary Dermatological Prevention and Rehabilitation (iDerm), University of Osnabrueck, Osnabrueck, Germany

8Department of Dermatology and Allergology, Technical University of Munich, Munich, Germany

J Eur Acad Dermatol Venereol. 2019 Nov;33(11):2202-2208

 

Even today, a substantial number of individuals with visible skin diseases still suffer from incomprehension and stigmatization. About 10 million people are affected by such diseases in Germany. The WHO strongly urges member states to take measures against stigmatization in skin diseases.

Krankheitsbelastung und Patientenbedarfe in Bezug auf sensible Körperregionen bei Patienten mit Psoriasis: Ergebnisse aus der Routineversorgung

R. Sommer, A. Langenbruch, A. Dankworth, M. Augustin (2019, May). 

50. Jahrestagung der Deutschen Dermatologischen Gesellschaft 2019: P306