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Was wünschen sich Patienten mit sichtbaren Hauterkrankungen und welche Probleme beschäftigen sie im Alltag?

R. Sommer

Jahrestagung des Arbeitskreises Psychosomatische Dermatologie; 2021.

Instrumentenentwicklung und -bewertung): Bestimmung der transnationalen gesundheitsbezogenen Lebensqualität: Die kulturübergreifende Validität des überarbeiteten Wound-QoL-Fragebogens


19. Deutscher Kongress für Versorgungsforschung 2020 (Oral presentation): ID119

Impact of moderate to severe pruritus in patients with psoriasis: Association between disease burden, patient needs and interpersonal experiences


R. Sommer, M. Augustin, C. Hilbring, S. Ständer, M. Hubo, HJ. Hutt, C. von Stülpnagel, N. da Silva

19. Deutscher Kongress für Versorgungsforschung 2020 (Oral presentation): ID285

Umsetzung der WHA-Resolution in Deutschland: Entwicklung, Erprobung und Evaluation von Interventionen zur Entstigmatisierung von Menschen mit sichtbaren chronischen Hauterkrankungen

R. Sommer, S. Mrowietz, R. von Spreckelsen , U. Mrowietz, C. Luck-Sikorski, N. Weinberger , M. Augustin

19. Deutscher Kongress für Versorgungsforschung 2020 (Oral presentation): ID142

Translating the WHA resolution in a member state: Development, testing, and evaluation of interventions against stigmatization of people with visible skin diseases.

R. Sommer, S. Mrowietz, R. von Spreckelsen , U. Mrowietz, C. Luck-Sikorski, N. Weinberger, M. Augustin (2020, September).

29th European Academy of Dermatology and Venereology Congress 2020 (Oral presentation): ID680

Assessing HRQoL in chronic wounds across countries: The cross-cultural validity of the revised Wound-QoL questionnaire

C. Von Stülpnagel, N. da Silva, M. Augustin, C. van Montfrans, C. Fife, AM.  Fagerdahl,  A. Gamus, E. Conde Montero, TM. Klein, C. Blome , R. Sommer (2020, September). 

29th European Academy of Dermatology and Venereology Congress 2020 (Oral presentation): ID1153

Xerosis cutis, weit mehr als nur „Trockene Haut“?

R. Sommer, M. Augustin, N. da Silva, L. Schmidt, G. Nippel, C. von Stülpnagel (2020, October)

UKE-Studie deckt psychosoziale Belastungen Betroffener auf. DERM 2020 (invited talk)

Assessing HRQoL in chronic wounds across countries: The cross-cultural validity of the revised Wound-QoL questionnaire

C. Von Stülpnagel, N. da Silva, M. Augustin, C. van Montfrans, C. Fife, AM. Fagerdahl, A. Gamus, E. Conde Montero, TM. Klein, C. Blome, R. Sommer (2020, October).

Annual Conference of the International Society for Quality of Life Research 2020 (Oral presentation): IDB202.6

Perception and determinants of stigmatization of people with psoriasis in the German population

R. Sommer1, J. Topp1, U. Mrowietz2, N. Zander1, M. Augustin1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Psoriasis-Center at the Department of Dermatology, University Medical Center Schleswig-Holstein, Kiel, Germany

J Eur Acad Dermatol Venereol. 2020 Dec;34(12):2846-2855

 

Perception of psoriasis in the general population is characterized by knowledge deficits and prejudice against those affected. The extent and possible predictors of stigmatizing attitudes remain unclear.

PMID:
32277524
DOI:
10.1111/jdv.16436

Characterizing treatment-related patient needs in atopic eczema: insights for personalized goal orientation

M Augustin1, A Langenbruch1, C Blome1, M Gutknecht1, T Werfel2, S Ständer3, S Steinke3, N Kirsten1, N Silva1, R Sommer1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Division of Immunodermatology and Allergy Research, Department of Dermatology and Allergy, Hannover Medical School, Hanover, Germany

3Center for Chronic Pruritus, Department of Dermatology, University Hospital Muenster, Muenster, Germany

J Eur Acad Dermatol Venereol. 2020 Jan;34(1):142-152

 

Atopic eczema (AE) is a common and burdensome chronic skin disease. Clinical guidelines suggest an evidence-based, personalized and stepwise treatment approach. Only few studies have so far focused on the specific patient needs in treatment.

PMID:
31465587
DOI:
10.1111/jdv.15919
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