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How do dermatologists' personal models inform a patient-centred approach to management: a qualitative study using the example of prescribing a new treatment (Apremilast)

R. M. Hewitt1, C. Bundy1, A-L. Newi2, E. Chachos3, R.Sommer2, C.E. Kleyn4, Matthias Augustin2, C.E.M. Griffiths4,  C. Blome2

1School of Healthcare Sciences, College of Biomedical & Lifesciences, Cardiff University, Cardiff, UK

2Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany

3Turner Institute for Brain and Mental Health, Monash University, Melbourne, Australia

4University of Manchester, The Dermatology Centre, Barnes Building, Salford Royal NHS 

Br J Dermatol. 2022 Jan 22. doi: 10.1111/bjd.21029

 

The quality of dermatology consultations is partly determined by how clinicians approach patient care. The term ‘Personal Models’ describes the explanatory frameworks of thoughts, feelings and experiences that drive behaviour. One study found that clinicians’ personal models, specifically their beliefs about autonomy and patient self-management, influenced the degree to which clinicians engage patients in shared decision-making during consultations. Further research is needed to further explore how clinicians’ personal models inform and affect the quality of patient care.

PMID:
Epub ahead of print. 35064926
DOI:
10.1111/BJD.21029

A Structured Intervention for Medical Students Significantly Improves Awareness of Stigmatisation in Visible Chronic Skin Diseases: A Randomised Controlled Trial

R. Sommer1, N-A. Weinberger2, R. Von Spreckelsen3, U. Mrowietz3,  M. C. Schielein4, C. Luck-Sikorski2 , M. Augustin1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg,

2Research group: Chronic diseases and psychological health (COPE), SRH University of Applied Health Sciences, Gera

3Psoriasis-Center Kiel, Department of Dermatology, Venereology and Allergology, University Medical Center Schleswig-Holstein, Campus Kiel, Kiel

4Department of Dermatology and Allergology, Faculty of Medicine, Technical University of Mun

Acta Derm Venereol. 2022 Jan 31;102:adv00641.

 

People with visible skin diseases often experience stigmatisation. The aim of this study was to develop and evaluate an intervention for medical students to counter the stigmatisation of people with skin diseases. A 3-h intervention was developed, including self-experience, education and a patient encounter. Effectiveness regarding outcomes was assessed at 3 time points: before and immediately after the intervention, and at 3-month follow-up. Data from 127 participants were analysed. Regarding all outcomes, significant effects were observed in the intervention group, for
“social distance”, “agreement with negative stereotypes”, “agreement with disease-related misconceptions” and “intended behaviour”. These results should encourage medical faculties to invest in such courses to prevent stigmatisation.

PMID:
34904689
DOI:
10.2340/actadv.v101.894

Parents with Asthmatic Children, Quality of Life

C. Crespo1, N. da Silva1,2 

1Faculty of Psychology and Educational Sciences, University of Coimbra, Coimbra, Portugal

2 University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

Enzyklopädie-Eintrag: Encyclopedia of Quality of Life and Well-Being Research

DOI:
10.1007/978-3-319-69909-7_4019-2

Development and validation of an outcome instrument measuring dry skin - the Xerosis Area and Severity Index (XASI).

R. Sommer, M. Augustin, N. da Silva, C.C. von Stülpnagel

Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

J Eur Acad Dermatol Venereol. 2022 Jan;36(1):e70-e72

 

The aim of this study was the development and validation of a composite measuring instrument for the assessment of the extent (surface area affected) and severity of xerosis in clinical practice and research.

PMID:
Epub 2021 Sep 21. 34482583
DOI:
10.1111/jdv.17636

Psychometric properties of the short version of the Freiburg Life Quality Assessment for chronic venous disease

T.M. Klein1, B. Bal2, A.L. Newi2, G. Bruning3, R. Sommer2, M. Augustin2, C. Blome2

1Institute for Health Services Research in Dermatology and Nursing, University Medical Center Hamburg-Eppendorf, Hamburg, Germany. Electronic address: t.klein@uke.de

2Institute for Health Services Research in Dermatology and Nursing, University Medical Center Hamburg-Eppendorf, Hamburg, Germany

3Institute for Scientific Phlebology, Krankenhaus Tabea, Hamburg, Germany

J Vasc Surg Venous Lymphat Disord. 2022 Jan;10(1):139-145.e1

 

Chronic venous disease is a frequent vascular condition. International societies have recommended the use of health-related quality of life (HRQoL) instruments in the assessment of patients with vascular diseases. Thus, the Freiburg Life Quality Assessment for chronic venous disease, 10-item questionnaire (FLQA-VS-10) was developed. The aim of the present study was to validate the FLQA-VS-10 in a prospective study.

PMID:
Epub 2021 Sep 14.34530177
DOI:
10.1016/j.jvsv.2021.09.002

Measuring wellbeing in psoriasis: Psychometric properties of the WHO-5 questionnaire

R. Sommer, L. Westphal, U. Mrowietz, S. Gerdes, M. Augustin (2022, September)

ePoster presented at 31st European Academy of Dermatology and Venereology (EADV) Congress

A Systematic Review and Meta-analysis of Factors Associated with Stigma of Dermatologic Disease Psychodermatology and quality of life

CFZ. Stuhlmann, S. Lysakova, C. Jordan, T. Revenson, R. Sommer, L. Wilhelm (2022, September)

ePoster presented at 31st European Academy of Dermatology and Venereology (EADV) Congress

Dermatological care of elderly people with psoriasis before and after entering a nursing home: A qualitative analysis from the perspective of medical providers

 C.C. von Stülpnagel1, J. Petersen1, M. Augustin1, R. Sommer2

1Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Deutschland.

2Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Deutschland. r.sommer@uke.de.

Hautarzt. 2022 Apr 28.

 

Demografische Veränderungen bewirken einen steilen Anstieg der Anzahl der über 65-Jährigen. Damit verbunden ist die Zunahme der Anzahl pflegebedürftiger, multimorbid Erkrankter. National wie auch international gibt es keine Informationen insbesondere zur Versorgung von Psoriasiserkrankten im Setting Pflegeheim und zur Frage, wie diese durch den Eintritt in ein Pflegeheim beeinflusst wird.

PMID:
PMC9047578
DOI:
10.1007/s00105-022-04989-4

Disease burden and patient needs in women of childbearing age with psoriasis: retrospective analysis from the German PsoBest registries Psoriasis

N. da Silva, L. Westphal, M. Augustin, R. Sommer (2022, September)

ePoster presented at 31st European Academy of Dermatology and Venereology (EADV) Congress

Is Social Stigma Responsible for the Poor Psychological Adjustment of People with Visible Skin Disease? A Meta-Analysis

CFZ. Stuhlmann, S. Lysakova, C. Jordan, TA. Revenson (2022, April)

Poster accepted for the Society of Behavioral Medicine, Baltimore, MD.

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