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First year predictors of health-related quality of life changes in short statured children treated with human growth hormone

J. Quitmann1, J. Bloemeke2, H-G. Dörr3, M. Bullinger2, S. Witt2, N. Silva2,4

1Center for Psychosocial Medicine, Institute for Medical Psychology, University Medical Center Hamburg-Eppendorf, Martinistraße 52, 20246, Hamburg, Germany. j.quitmann@uke.de

2Center for Psychosocial Medicine, Institute for Medical Psychology, University Medical Center Hamburg-Eppendorf, Martinistraße 52, 20246, Hamburg, Germany

3Division Paediatric Endocrinology, Hospital for Children and Adolescents, University Erlangen-Nürnberg, Erlangen, Germany

4Faculty of Psychology and Education Sciences, Center for Research in Neuropsychology and Cognitive Behavioral Intervention, University of Coimbra, Coimbra, Portugal

J Endocrinol Invest. 2019

 

Little attention has been directed towards examining the impact of predictors on change in health-related quality of life (HRQOL) within the course of growth hormone (GH) treatment in pediatric short stature. We aimed to assess changes in HRQOL and its sociodemographic, clinical and psychosocial predictors in children and adolescents diagnosed with growth hormone deficiency (GHD), and born short for gestational age (SGA) before and 12-month after start of GH treatment from the parents' perspective. Results were compared with an untreated group with idiopathic short stature (ISS). In this prospective multicenter study, 152 parents of children/adolescents (aged 4-18 years) provided data on their children's HRQOL at baseline and at 12-month follow-up.

PMID:
Epub 2019 Mar 6. 30840207
DOI:
10.1007/s40618-019-01027-4

Do 8- to 18-year-old children/adolescents with chronic physical health conditions have worse health-related quality of life than their healthy peers? A meta-analysis of studies using the KIDSCREEN questionnaires

N. Silva1,2, M. Pereira3, C. Otto4, U. Ravens-Sieberer4, M. C. Canavarro3, M. Bullinger5

1Centre for Research in Neuropsychology and Cognitive Behavioral Intervention, Faculty of Psychology and Education Sciences of the University of Coimbra, Rua do Colégio Novo, 3000-115, Coimbra, Portugal. neuzambsilva@gmail.com

2Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Martinistraβe 52, W26, 20246, Hamburg, Germany. neuzambsilva@gmail.com

3Centre for Research in Neuropsychology and Cognitive Behavioral Intervention, Faculty of Psychology and Education Sciences of the University of Coimbra, Rua do Colégio Novo, 3000-115, Coimbra, Portugal

4Department of Child and Adolescent Psychiatry and Psychotherapy, University Medical Center Hamburg-Eppendorf, Martinistraβe 52, W29, 20246, Hamburg, Germany

5Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Martinistraβe 52, W26, 20246, Hamburg, Germany

Qual Life Res. 2019

 

This meta-analytic review aimed to estimate the magnitude of health-related quality of life (HrQoL) impairments, as assessed by the KIDSCREEN questionnaires, both self- and parent-reported, in 8- to 18-years-old children/adolescents with chronic health conditions.

PMID:
Epub 2019 May 4. 31055778
DOI:
10.1007/s11136-019-02189-7

Epidemiology and dermatological comorbidity of seborrhoeic dermatitis: population-based study in 161 269 employees

N Zander1, R Sommer1, I Schäfer1, R Reinert1, N Kirsten1, B-C Zyriax1, J-T Maul2, M Augustin1

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Department of Dermatology, University Hospital of Zurich, Zurich, Switzerland

Br J Dermatol. 2019 Oct;181(4):743-748

 

Seborrhoeic dermatitis is a common but epidemiologically poorly researched chronic skin disease.

Objectives: To characterize the prevalence and dermatological comorbidity of seborrhoeic dermatitis in Germany.

PMID:
Epub 2019 Jul 17. 30802934
DOI:
10.1111/bjd.17826

Keeping a PRO instrument alive – The international pediatric DISABKIDS initiative

M. Bullinger, J. Chaplin, H. Mühlan, S. Schmidt, N. da Silva (2019, October). 

Poster session presented at the ISOQOL 26th Annual Conference, San Diego, California, USA.

DOI:
10.13140/RG.2.2.10709.99047

Topology of psoriasis in sexually sensitive and visible body areas: Disease burden and patient needs in routine care

N. da Silva, M. Augustin, A. Langenbruch, U. Mrowietz, D. Thaci, HW. Boehncke, R. Sommer (2019, October). 
 

E-poster presented at the 28th European Academy of Dermatology and Venereology (EADV) Congress, Madrid, Spain.

DOI:
10.13140/RG.2.2.12492.56962

Sex-related impairments and patient needs in anogenital psoriasis: Difficult to communicate topics and their impact on patient-centred care

N. da Silva, M. Augustin, A. Langenbruch, U. Mrowietz, D. Thaci, HW. Boehncke, R. Sommer (2019, October). 

E-poster presented at the 28th European Academy of Dermatology and Venereology (EADV) Congress, Madrid, Spain. 

DOI:
10.13140/RG.2.2.35980.67206

Stigmatisierungserleben bei Psoriasis – qualitative Analyse aus Sicht von Betroffenen, Angehörigen und Versorgern [Perception of stigmatization in people with psoriasis-qualitative analysis from the perspective of patients, relatives and healthcare professionals]

R Sommer1, M Augustin2, U Mrowietz3, J Topp2, I Schäfer2, R von Spreckelsen4

1Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Deutschland. r.sommer@uke.de

2Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Deutschland

3Klinik für Dermatologie, Allergologie und Venerologie, Universitätsklinikum Schleswig-Holstein (UKSH), Campus Kiel, Kiel, Deutschland

4Klinik für Psychotherapie und Psychosomatik, Universitätsklinikum Schleswig-Holstein (UKSH), Campus Kiel, Kiel, Deutschland

Hautarzt. 2019 Jul;70(7):520-526

 

Background: Numerous studies have shown that psoriasis is associated with severe losses in almost all dimensions of health-related quality of life. An important aspect is the stigmatization experience of those affected.

Objective: The aim of this study was to examine the perception of stigmatization from the perspective of patients, relatives and healthcare professionals using a qualitative approach.

PMID:
31134287
DOI:
10.1007/s00105-019-4411

People-centered Health Care (PCHC): A new concept for characterizing comprehensive, effective care in dermatology

R. Sommer, M. Augustin (2019, October)

28th European Academy of Dermatology and Venereology Congress 2019: P0918

Patient needs and treatment goals in atopic eczema: Insights for patient-centered routine care

M. Augustin, A. Langenbruch, R. Reinert, C. Blome, M. Gutknecht, T. Werfel, S. Ständer, S. Steinke, N. Kirsten, R. Sommer (2019, October). 

28th European Academy of Dermatology and Venereology Congress 2019: P0252

Cumulative life course impairment CLCI - a concept supporting people-centered care in dermatology

M. Augustin, R. Sommer (2019, October). 

28th European Academy of Dermatology and Venereology Congress 2019: P1860

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